Stories

From the moment he was born, Jack faced an uphill battle. Diagnosed with omphalocele - a rare condition where the organs form outside the body - he underwent multiple surgeries before receiving a life saving kidney transplant at just 20 months old.

In January 2022 , four-year-old Ash was diagnosed with acute lymphoblastic leukaemia. His treatment will continue until April 2024.

Diagnosed with dilated cardiomyopathy when he was only one year old, Clayton went into end stage heart failure at just thirteen.

Eloise was diagnosed with rhabdomyosarcoma – a very rare type of cancer that forms in the soft tissue. Treatments included 16 months of surgeries, scans, chemotherapy and radiation.

Evie was born with cystic fibrosis – a life threatening disorder that will likely require her to undergo a lung transplant in the future.

At just four and a half months old, Halle was diagnosed with acute myeloid leukaemia.

Harley was born with hypoplastic left heart syndrome, one of the most rarest and severe heart defects.

Isaac was diagnosed with brain cancer at only four-months-old. His tumour is inoperable, but he underwent treatment to shrink the tumour.

Jonathan had a rocky start to life, after being diagnosed with hypoplastic left heart syndrome within three days of being born.

Lachlan was born with chronic kidney disease and at just four months old, he went into end stage renal failure.

At an early age Lachy was diagnosed with bronchiectasis and tracheobronchomalacia.

At just 13 weeks old, Mahalia was diagnosed with a rare condition – Chromosome 22 microduplication syndrome. With little information available the family have faced a journey into the unknown.

Born with multiple joint deformities, five-year-old Patrick has undergone ongoing plaster casting of his torso and legs since birth.

Nine-year-old Raf is currently receiving treatment for Stage 4 Neuroblastoma - including multiple stem cell transplants – a life changing immunotherapy – to treat his cancer.

Seventeen-year-old Sarah was diagnosed with clear cell sarcoma in her knee following an emergency department admission.