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Ava's story

Just a month shy of her eighth birthday, Ava was diagnosed with stage four neuroblastoma. She was given just a 50 percent chance of survival.

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Ava's story

Ash's story

In January 2022 , four-year-old Ash was diagnosed with acute lymphoblastic leukaemia. His treatment will continue until April 2024.

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Ash's story

Clayton's story

Diagnosed with dilated cardiomyopathy when he was only one year old, Clayton went into end stage heart failure at just thirteen.

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Clayton's story

Eloise's story

Eloise was diagnosed with rhabdomyosarcoma – a very rare type of cancer that forms in the soft tissue. Treatments included 16 months of surgeries, scans, chemotherapy and radiation.

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Eloise's story

Evie's story

Evie was born with cystic fibrosis – a life threatening disorder that will likely require her to undergo a lung transplant in the future.

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Evie's story

Halle's story

At just four and a half months old, Halle was diagnosed with acute myeloid leukaemia.

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Halle's story

Harley's story

Harley was born with hypoplastic left heart syndrome, one of the most rarest and severe heart defects.

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Harley's story

Isaac's story

Isaac was diagnosed with brain cancer at only four-months-old. His tumour is inoperable, but he underwent treatment to shrink the tumour.

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Isaac's story

Jonathan's story

Jonathan had a rocky start to life, after being diagnosed with hypoplastic left heart syndrome within three days of being born.

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Jonathan's story

Lachlan's story

Lachlan was born with chronic kidney disease and at just four months old, he went into end stage renal failure.

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Lachlan's story

Lachy's story

At an early age Lachy was diagnosed with bronchiectasis and tracheobronchomalacia.

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Lachy's story

Mahalia's story

At just 13 weeks old, Mahalia was diagnosed with a rare condition – Chromosome 22 microduplication syndrome. With little information available the family have faced a journey into the unknown.

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Mahalia's story

Patrick’s story

Born with multiple joint deformities, five-year-old Patrick has undergone ongoing plaster casting of his torso and legs since birth.

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Patrick’s story

Raf's story

Nine-year-old Raf is currently receiving treatment for Stage 4 Neuroblastoma - including multiple stem cell transplants – a life changing immunotherapy – to treat his cancer.

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Raf's story

Rowan's story

Rowan is living with an acquired brain injury after he was injured during a motorcross event at seven-years-old.

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Rowan's story

Sarah's story

Seventeen-year-old Sarah was diagnosed with clear cell sarcoma in her knee following an emergency department admission.

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Sarah's story

Tiana's story

In March 2022, Tiana was diagnosed with Ewing sarcoma – a rare cancer of the bone or soft tissue.

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Tiana's story
+ Help deliver cures this Christmas
Help deliver cures this Christmas

1 in 3 children with rare and complex diseases will not live to see their fifth Christmas. Help fund research that could save lives today.

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